Huntington's Disease Society of America
Northeast Ohio Chapter

SUPPORT GROUP MEETINGS
We invite all Huntington’s Disease patients, their families, caregivers and individuals who are at risk to attend our monthly Support Group meetings. Monthly meetings are held in Cleveland and Akron and are facilitated by the Chapter’s Social Worker Kristin Zverloff. Kristin is a Licensed Independent Social Worker.

You can contact Kristin via email at kitzmiller27kr@yahoo.com or leave a message at the Chapter Office at 330-998-6600 and Kristin will return your call.

For the dates and locations of 2009 meetings please see Chapter News.

CURRENT NEWSLETTER [pdf]

Team Hope - Walk for HdTEAM HOPE: WALKING FOR HD
Saturday June 27, 2009
8:00 a.m. to 12:00 p.m.
Akron Zoo, 500 Edgewood Avenue, Akron, OH

The Huntington’s Disease Society of America Northeast Ohio Chapter needs YOU to show your support for people who are affected by Huntington’s Disease – and you can do it while having “fun with the animals.”

FOOD – FUN - PRIZES

SPONSORS: If you are interested in helping sponsor this event, call the Chapter Office at 330-998-6600. There are various sponsorship levels available.

TEAMS: It’s time to form your teams! You can solicit pledges by using Firstgiving online fundraising.  To set up your own personal fundraising page, go to: www.firstgiving.com/hdsa-oh-ne

Or, if you are not able to participate but still want to make a donation, mail a check to the Chapter Office or use the firstgiving website: www.firstgiving.com/hdsa-oh-ne

It is safe, secure and easy! For more information or to register yourself or a team, please contact Jeanie Chresos at 216-351-3932. The registration fee is $25.00 and includes admission to the zoo, a t-shirt and lunch. REGISTRATION FORM [pdf].

Mark your calendars! See newsletter [pdf] for more information.

Saturday, August 1 – BLUE JEAN BALL – a celebration of american music with special guest, drummer Trey Gray from Brooks & Dunn – NO NECKTIES PLEASE!

Saturday, September 5 – GOLF OUTING - Hickory Nut Golf Course - 23601 Royalton Road (ROUTE 82), Columbia Station, OH

Saturday, September 12 – Team Hope: Walking for HD
WALK-A-THON – Cleveland – Wendy Park on Whiskey Island

HDSA MARKETPLACE
Turn your online purchase into a donation for the Huntington's Disease Society of America. Shop through the HDSA Affiliates and HDSA will receive a percentage from all your purchases made. Visit www.HDSA.org and click on Marketplace.

Huntington's Disease Society of AmericaDr. George Sumner and the Disease Bearing His Name by John P. Conomy, M.D., J.D. Huntington's Disease Society of America: a Brief History of People and Programs 1967-1997 Genetic Testing for HD: A Guide for Families Huntington's Disease: A Disease of Mind and Body (A Case for Support) More Resources on the Web

The National Research Roster for HD Patients and Families is a nationwide registry and information resource dedicated to assisting scientific research on HD. The Roster identifies HD patients and families who are interested in participating in research projects to help scientists learn more about HD. The Roster has involved nearly 3,000 families in HD research.

The Indiana University DNA Bank was established as the world’s first DNA bank in 1984. The DNA bank was created so that individuals and families could store DNA samples that may be needed for future genetic testing.

For more information about the Roster or the DNA bank, please visit http://hdroster.iu.edu or contact the coordinator by calling 317-274-5744 or email pswolf@iupui.edu
YOU CAN HELP! Both funds and volunteers are needed to help the Huntington's Disease Society of America grow. To make a donation, to offer your time or for more information, please contact The HDSA NE Ohio Chapter at 330-922-3443 or your local chapter.
TOLL-FREE NATIONAL HDSA INFORMATION LINE 1-800-345-HDSA — on the Web at www.hdsa.org

Barbara Kaiser – Development Director
HDSA Northeast Ohio Chapter
10176 Luman Lane
Twinsburg, OH 44087
bkaiser@HDSA.org
Phone: 330-998-6600
Fax: 330-998-6677

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