Huntington's Disease Society of America: Northeast Ohio Chapter

SUPPORT GROUP MEETINGS
We invite all Huntington’s Disease patients, their families, caregivers and individuals who are at risk to attend our monthly Support Group meetings. Monthly meetings are held in Cleveland and Akron and are facilitated by the Chapter’s Social Worker Kristin Kitzmiller. Kristin is a Licensed Independent Social Worker.

You can contact Kristin via email at kitzmiller27kr@yahoo.com or leave a message at the Chapter Office at 330-998-6600 and Kristin will return your call.

On Monday, December 7 at the Akron Support Group Meeting, Dr. Anwar Ahmed will be making a presentation on the Drug Studies he is conducting at the Cleveland Clinic. The meeting will be held at the Ellet Community Center, 2449 Wedgewood Drive, Akron, OH 44312. [MAP].The meeting will begin at 6:30 p.m. and Dr. Ahmed's presentation will begin at approximately 7:00 p.m. You can find information on each of the studies, HORIZON and CREST-E, on the HSG website (http://www.huntington-study-group.org/ ClinicalResearch/ClinicalTrialsObservationalStudiesinProgress/tabid/81/Default.aspx.) If you are unable to attend this meeting, but are interested in participating in these trials, contact Patricia St. Marie at the Cleveland Clinic at stmarip@ccf.org or call 216-445-3125.

Beginning in January of 2010, the Akron Support Group Meetings will be held on the first Tuesday of each month.

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CAREGIVER'S CORNER WEBINAR: The Huntington’s Disease Society of America invites you to attend the inaugural Caregiver’s Corner webinar on Monday, November 30, 2009 at noon EDT. Caregiver’s Corner is designed to provide information, resources and support for caregivers so they are better able to face the daily challenges of living with HD.

Our first webinar will feature Marsha Miller, Ph.D., a caregiver, frequent presenter and editor of the HD Lighthouse web site. Dr. Miller’s presentation will focus on Coping Strategies for Caregivers.

The webinar will run one hour with time at the end for questions. A short survey immediately following the webinar will ask viewers to rate the webinar so we can continue to improve the process, the subject matter and the way in which information is communicated.

If you cannot join us on Monday, you can still view this presentation at your leisure by visiting the HDSA web site (www.hdsa.org) approximately 24 hours after the live webcast. A link on the HDSA home page will take you to the webinar. Thereafter, older webinars will be archived in the Living with HD section.

To register to attend the webinar please go to: https://www2.gotomeeting.com/register/521635458

After registering you will receive a confirmation email containing information about joining the Webinar.

Participating in the Webinar is very easy. All you will have to do is go to the link you receive after you register. If this is your first Webinar we recommend that you log on five minutes before the start of the Webinar as it may take a few minutes for the process to complete.

We look forward to seeing you there.

This pilot series is made possible by an educational grant from Lundbeck.

HDSA MARKETPLACE
Turn your online purchase into a donation for the Huntington's Disease Society of America. Shop through the HDSA Affiliates and HDSA will receive a percentage from all your purchases made. Visit www.HDSA.org and click on Marketplace.